Hi all! Tomorrow is the day! The day when, bright and early, whether I like it or not, Cannon’s Chait Button will have to be replaced. Like I mentioned in my “Follow Up” post a couple posts ago…….every 9 months-1 year this will have to happen.
Any prayers are greatly, and I mean greatly, appreciated. We are a bit nervous even though all should be well. It should be. There is a decent chance though that the new button will not go back in the pathway. Last July, when he got the Chait……it was such a tough decision and transition. We hated that we had to do this. But Cannon’s body and the doctors were telling us it was time. We had no other choice. He had a terrible, terrible, LONG journey to accepting it. But now, we completely appreciate it and we don’t want to imagine life again without it. We do NOT want to go back to a time when he is in the hospital every couple of weeks. And hurting all the time. Not EVER again!
We haven’t told Cannon anything yet. We didn’t want him to be anxious. It’s been awhile but he still knows the hospital all too well. We will tell him on the way in the morning. I have written a social story similar to the ones that you might remember that we used last year. It will include Isaiah 41:10 to encourage him to be brave. “Fear not, for I am with you; be not dismayed, for I am your God. I will strengthen you, I will help you, I will uphold you with my righteous right hand.” We used to recite this one often when our hospital stays were too frequent. I hope he will remember and gain strength from the power of those words! 🙂
It’s funny……we have had 2 calls from the hospital. Both from nurses giving us instructions for before, during, and after the procedure. But neither of them had ever heard of a Chait Button. It is still amazing to me how rare his device is and how few people in the medical community are aware of it.
Here is an above the skin and a below pic of what the Chait Button looks like.
If all goes well, the whole thing could be fairly quick and with observation time included……we could be out of there by early afternoon. And if it doesn’t…….well, we will cross that bridge if we get there. 9 a.m. tomorrow is the scheduled time. Again, we would be so honored and thankful if you could partner with us and pray our little man through this! And now I am off to bed…..praying Proverbs 3:24 will be true. “When you lie down, you will not be afraid: when you lie down, your sleep will be sweet.” LOVE TO ALL!